Response Requested by August 14, 2026

The New York Alliance for Inclusion and Innovation (New York Alliance), supported by funding from the New York State Council on Developmental Disabilities, wants to learn more about housing for people with intellectual or developmental disabilities (I/DD) in New York State. We are creating new housing resources and looking for better ways to help people with I/DD live where they choose.

We are especially interested in learning what happens when a parent, family member, or other close supporter is not available or no longer able to provide as much help as they once did.

This survey is the first step in our research. We want to hear from people receiving support and services, family members, and others who provide support.

The survey asks about:

  • Current housing situation
  • Plans for the future
  • Housing-related supports and services needed
  • Concerns and ideas about future housing and support needs

Your responses are important and will help us better understand the housing needs, goals, and experiences of people with I/DD. Every response helps us learn more about what is working well, what challenges people face, and what supports may be needed in the future.

Taking part in this survey is completely voluntary. Thank you for taking the time to share your experiences, ideas, and perspectives. Your feedback will help inform future planning, resources, and supports for people with I/DD and their families.

Please complete the survey by Friday, August 14, 2026.

Complete survey

If you have questions about this survey, please contact:

Project Manager: Carol Napierski — cnapierski@nyalliance.org
Project Director: Seth Greenman — sgreenman1nyhrc@gmail.com

In other news:

Join LIFEPlan CCO and ACANY on

Thursday, October 15 at 12 p.m.

Join LIFEPlan CCO and ACANY for a screening of UNSEEN, a powerful award‑winning documentary about how caregivers are often overlooked and unsupported. The film gives honest insight into the daily realities of many families caring for people with intellectual and developmental disabilities, highlighting the challenges they navigate while striving to provide the best care for their loved ones. Following the film, we’ll discuss how caregivers can support legislation that benefits them and their families. (Length of film: 53 minutes)